Press ReleaseView printer-friendly version << Back
Audentes Therapeutics Recognizes Rare Disease Day by Launching "Be Bold for Courageous Patients" Program to Support Patients Living with Rare Diseases
"Be Bold for Courageous Patients" is intended to enhance and expand the Company's commitment to rare disease patients and their families. As part of this year's effort, Audentes will provide a sponsorship grant to help support children from the rare disease community to attend The Painted Turtle and
These unique camps offer children and their families the opportunity to sing, laugh, grow, and discover their potential. Audentes employees are also volunteering their time to make camper family weekend kits, blankets, and turtle pillows for families attending the Neuromuscular and Genetic Family Weekend and
"Audentes is derived from the Latin word 'audeo,' which means 'those who have courage; those who have boldness, daring.' The name Audentes reflects our heritage as a patient-focused company dedicated to making a bold effort to find solutions for patients," said
"We are excited to have Audentes as a sponsoring partner this year," said
The Audentes "Be Bold for Courageous Patients" program is comprised of the following initiatives:
- Support rare disease work. Provide corporate grants and contributions that aid the work of scientists, researchers, medical professionals, and advocacy groups that are finding ways to help the rare disease community and making a lasting, positive impact. In 2019, Audentes will contribute to more than 30 organizations.
- Impact the patient community in a unique, positive way. Beyond research and development of innovative gene therapy products, Audentes wants to positively impact the lives of patients and families in a unique way, such as supporting The Painted Turtle and
Double H Ranchmedical specialty camps.
- Evolve employee volunteerism companywide to further Audentes' commitment to the patient community. All employees receive time off to volunteer for the organizations that most inspire them, focusing on the patient community.
There are approximately 7,000 different types of rare diseases affecting up to 350 million people worldwide. Eighty percent of rare diseases are genetic in origin, and thus are present throughout a person's life, even if symptoms do not immediately appear. An estimated 50 percent of the people affected by a rare disease are children, and 30 percent of children with rare disease will not live to see their fifth birthday.1 Although rare disease patients and their families face many challenges, enormous progress is being made every day.
About Rare Disease Day
Rare Disease Day takes place on the last day of February, a month known for having a 'rare' number of days. It was first launched in
About The Painted Turtle
The Painted Turtle's mission is to provide a year-round, life-changing and authentic camp experience for children with chronic and life-threatening illnesses. The Painted Turtle supports children's medical needs, inspires them to reach beyond their illness, and provides care, education, and respite for their families. All campers and families attend free of charge. For more information, visit www.thepaintedturtle.org.
For more information regarding Audentes, please visit www.audentestx.com.
View original content to download multimedia:http://www.prnewswire.com/news-releases/audentes-therapeutics-recognizes-rare-disease-day-by-launching-be-bold-for-courageous-patients-program-to-support-patients-living-with-rare-diseases-300803748.html